Saturday, March 6, 2010

Test Time

We are here at Texas Children's Hospital for Mush's growth hormone stimulation test, and of course the first thing he asks for this morning is food. He did not like that I ignored his request. But as he soon saw, food was going to be the least of his problems. I say that because he got stuck twice for his IV line. The first one blew immediately, but so far the second one is holding up. We are half way through.

UPDATE: What's worse than getting stuck again? Answer: Mom leaving you with the big, bad nurse that stuck you! :) I had to pee, so I had no choice but to ask the nurse to hold Mamush. He was a real trooper throughout the test. First, he was given clonidine which made him drowsy. Then he had an iv of arginine and his blood was drawn every 30 minutes. The nurse had to flush his tubing with saline several times which made him scream, and if you have ever experienced that, it hurts! The nurse, however, was able to make all of the draws except for the last one. That darned iv line just plugged up tight, but it's over now. SO now we just wait for the results and see what we need to do next. Hopefully we won't have to wait another 3 months for the results. (I think he has to have an MRI of the brain to make sure he doesn't have a tumor on his pituitary gland that could be causing the problems.)


  1. Oh poor little is so hard to see them go through things like this...I pray you find answers. Hugs to you both!

  2. It's been a long hard road for sweet Mamush. I am so thankful God put him in your capable arms, I believe between you and your hubby and your persistence, he is going to be just fine!! I think of you all often!!