Tuesday, December 7, 2010


Yes, It's been awhile.  I guess ADD keeps me from focusing on keeping this blog updated.  But I've decided to share some news.  Mamush had PE tubes placed in his ears in October.  For those of you that know how minor this is for most children, I feel you rolling your eyes, but this was huge for us because this was his second try at tubes.  You see, his ear canals are like a preemie's.  Our local ENT sent us to a friend of his in Houston, Newton Duncan, who deals with Down's children on a daily basis.  Apparently, they also have small canals.  We thought we were going for a consult for hearing aides, but after examining Mamush, Dr. Duncan said he has dealt with smaller ears!   And now he can hear!!!  Imagine the tears that streamed down my face in the recovery room when Mamush said, "That's too loud." 

But that's not all.  Mamush has also been seeing a new pediatric endocrinologist at UTMB in Galveston.  Unlike the resident at Texas Children's Hospital, Dr. Lee has listened to our concerns.  Mamush just had an MRI of this brain a few weeks ago, and Dr. Lee said that it showed he had a very small pituitary.  So now what?  He'll have a return visit in January, and Dr. Lee will begin working on getting growth hormone approved for him.  Surely Blue Cross will see his need.  He is no where near the bottom percentile on a growth chart, he hasn't grown a centimeter in 18 mo., and we have ruled out any other possible causes.  And let me tell you how much of a trooper he is!   The anesthesiologists were commenting on how well behaved he was, and saying that they wished every child was like him.  He has made me proud, and I'm sure his bio parents would be too.


  1. Wow, what a blessing that he got the tubes placed and that he's getting the right care for his growth issues. Praying that now that they've identified the issues, they'll be able to address them.

  2. So happy to hear that PROGRESS is being made for Mamush! That's great news! Now, good luck with BCBS... they continue to tick me off on an almost weekly basis.