New News!

Yes, I know I haven't posted lately. I get so busy with my children's activities and medical visits that I procrastinate to the extent I feel I can never catch up! However, I received some news today that prompted me to post. First, I have to say that Mamush's CT of the head and renal and heart ultrasound were normal. That's great because I am always prepared for surprises. We did have some drama around the CT of his head though. His pediatrician ordered it without contrast, but when I went to the office for the procedure, they informed me that it would be with contrast. Instead of calling my husband and fussing for not preparing me for Mamush's stick, I just assumed all was okay. The nurse (I guess) tried 3 times unsuccessfully to get iv access for the contrast, but I guess the good Lord was watching over my little man. You see, he has abnormally small airways, and the contrast could have, unbeknownst to me, caused life-threatening airway constriction due to the dye. When we were finished, and I called my hubby to fuss, he became alarmed and "---- hit the fan". That's when I learned of what could have happened... Yikes! So anyway, all is okay and the tests were normal. This just means that we haven't found another birth defect which is a good thing! What we did find out was that Mamush has growth hormone deficiency! Well no wonder why he looks like he's not even a year old! Yea! This is something we can treat, although daily GH injections aren't fun for anybody! How much will that cost? That is the $50,000 question right now, but we will find a way. That's all I know at this point. We are STILL waiting on getting a pediatric endocrinology consult, and I guess we will need to go back to the genecist now too. (We were waiting until Texas Children's got their new equipment.) Thanks to all who said they would be praying for our family. I finally have some more answers and am thankful for that...